*PUBLICATIONS

Governance and business models for sustainable health data collaboratives

This new report has been co-authored by The Data Tank and the Impact Licensing Initiative. It report offers a timely synthesis of governance and business model options for health data collaboratives. Based on a rapid review of academic, policy, and industry literature, it examines how to sustain ecosystems for data reuse that deliver public value while ensuring legitimacy, transparency, and long-term viability. Drawing from real-world case studies, it highlights the role of social licenses, impact licensing, and collective consent mechanisms. The report includes actionable recommendations for designing purpose-driven, values-based, and financially sound collaboratives that align with regulatory realities while advancing equitable access to health data. A foundational read for those building data collaboratives with a public interest lens.

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*PUBLICATIONS

New policy brief: What’s Next for Europe’s Digital and Data Strategies

In this brief, we respond to the European Commission’s plan for a new strategy, the Data Union strategy, introduced in the new AI Continent Action Plan. We consider these plans alongside other announced and related initiatives such as the EU Cloud and AI Development Act and the EU Democracy Shield. Our proposed actions, which we further develop below, can be summed up under the following points.

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*NEWS & EVENTS

Apply Now: Join the Data Stewards Intensive Course 2.0 for Civil Society in Berlin

Data has the power to transform civil society. When used strategically, it can inform decision-making, enhance service delivery, and strengthen advocacy efforts. Yet, despite a growing awareness of data’s value, many civil society organisations in Germany continue to face challenges in adopting open data practices and fostering meaningful data collaboration.

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*BLOG

The Future of Research Funding and Data: Insights from the DeSci.Berlin 2025 Conference

Earlier this month, I attended the DeSci.Berlin 2025 Conference at Molecule HQ, where scientists, blockchain developers, and investors gathered to examine how scientific research might evolve in the Web3 environment.

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