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The Urgent Need to Reimagine Data Consent

Excerpt from the Stanford Social Innovation Review: July 26, 2023

Data is a powerful tool in addressing contemporary challenges, but current consent models don’t go far enough to align with community expectations and protect vulnerable populations.

By Co-founder and Principal Scientific Advisor Stefaan G. Verhulst, Program Manager Laura Sandor & CEO Julia Stamm

In June 2023, the United Nations High Commissioner for Refugees (UNHCR) announced a grim milestone. The war in Ukraine, combined with upheaval in Afghanistan, Sudan, and other areas, had created a record 110 million forcibly displaced people globally. This situation, Filippo Grand, the head of UNHCR, announced, is “an indictment on the state of our world.”

2023’s upsurge in forced migration represents the intensification of an ongoing trend. Year after year, the world has witnessed unprecedented forcible movements of people. As policy makers struggle to respond to the unfolding human catastrophe, they have increasingly turned to the possibilities offered by technology, and data in particular. Civil society and humanitarian organizations are attuned to the reality that these streams of people generate massive amounts of data that can, for instance, help channel aid to the neediest, predict disease outbreaks, and much more.

Read complete version @Stanford Social Innovation Review

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